Thursday 26 July 2007

A brilliant travel video

I was sent this great YouTube video this morning and felt I had to share it! Matt is the guy who has travelled around the world and danced in the most random of places very funny. It was nice to see some of the places myself and Elaine and visited on our travels. Well done to him, great entertainment!

Wednesday 25 July 2007

Ebay and my ipod accessories

While I was travelling up Killimanjaro last year I broke my IPOD. I had most of the nice gadgets that went with it. Too my frustration the new IPOD does not accept the the iTRIP and the iTalk so I had to sell them ;o( If you know of anyone wanting some good quality accessories for the first ipod 20GB model then if you could kindly send them here.

Monday 2 July 2007

Haemochromatosis

I found out several years ago that I had this disorder, the "celtic jaundice" was something I accidentally stumbled over when I was getting a complete blood checkup done. Something I do randomly when I get paranoid! Since my diagnosis in 2001 I have had 23 blood tests, 22 blood lettings and 2 liver biopsies. Phlebotomies as they are also known takes 400ml(approx) of your blood to "dilute" the iron overload effect.
I am amazed that the only treatment for one of the biggest genetic disorders in humankind involves such a pre historic cure. Haemochromatosis is very widespread and most people don't find out until the symptoms are so widespread that it involves pretty drastic measure.

I have travelled around the world and have found that the cheapest form of blood analysis was in Tanzania (€4). The most proficient service and advanced service I received was in Australia in Perth. Excellent service under the Red Cross Group!

If you have this disorder there is loads of information online. The references I found useful are listed below.
As usual wikipedia gives a great overview of the subject here and the Irish Haemochromotosis Association keep the topic very up-to-date and their members subscription newsletter is very interesting too.

One invention I would love to have is the ability to self test my iron levels from the comfort of my own home. Any ideas anyone? Is there such a way?

Update 03 July 2007:
Visited my doctor this morning for a blood checkup and he mentioned that the IBTS(Irish Blood Transfusion Service) has started a pilot program to take people suffering from Haemochromotosis and use their blood for donations. He gave me an interesting newsletter to read which can be found here . This is great news as they are providing this service free of charge! Lets roll it out all over Ireland please.